The Helpline is covered by volunteers Monday to Friday 09:00-13:00, if a Helpline volunteer is unavailable our answering system will pick up your call (24 hours 7 days a week). We aim to reply to all messages within 2 working days. Please note that for privacy reasons, Helpline Volunteers returning your call will display as a 'Withheld Number' or 'Unknown' on your caller ID.
If you'd prefer to e-mail the team, you can reach them on firstname.lastname@example.org
I am a proud professional member of HMSA, who provide services run predominantly by approximately 45 skilled and trained volunteers who have one of the conditions it serves. If I can further assistance with your recovery/rehab or just if you need a listening ear, you can get in touch email@example.com
Other sources of help
Here are some other organisations which you may find useful:
HSMA (https://www.hypermobility.org/) The HMSA provides local both online support groups, and local groups across the UK, for its members. It continues to be the place to go for information and education on the hypermobility related disorders that affect so many people in the UK and globally.
PoTS UK (https://www.potsuk.org/) Providing information and support about postural orthostatic tachycardia syndrome (PoTS) for sufferers, medical professionals, family, and friends
Pain Concern (http://painconcern.org.uk/) Work to improve the lives of people living with pain and those who care for them.
Ehlers-Danlos Support UK (https://www.ehlers-danlos.org/)
Brittle Bone Society (https://brittlebone.org/) supports people with Osteogenesis imperfecta
Stickler syndrome UK (https://stickler.org.uk/) is a non-profit organisation that provides information for families, healthcare and medical professionals affected by or caring for people with Stickler Syndrome.
The Arthritis and Musculoskeletal Alliance (ARMA) (http://arma.uk.net/) is the umbrella body for the arthritis and musculoskeletal community in the UK.
Pain UK (https://painuk.org/) an alliance of charities providing support and help for those living with pain. Pain management, healthcare advice. tips and resources available.
The Ehlers-Danlos Society (https://www.ehlers-danlos.com/) Formerly the EDNF, support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population. They're developing a Global Registry of patients with EDS or HSD